• ‘I'm going to prove you wrong': How a D.C. power couple used an ALS diagnosis to create a political juggernaut

    6 days ago - By STAT

    KENILWORTH, Ill. - When her husband first floated the idea of an advocacy organization for people diagnosed with ALS, Sandra Abrevaya responded in just two words: The first wasn't suitable for print, and the second was “no.”
    Abrevaya had founded and run nonprofits in the past. She had experienced the toll they took on her as a parent, friend, and wife. And, since her husband's ALS diagnosis months before, she'd been immersed in a crash course on the disease. She knew that within a few short years, he would require more care than their two daughters, a baby and a 2-year-old.
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